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Jul
08
2010

Type 1 Diabetes and Gluten: A real life story

Brain Damage from gluten

Today’s post is a guest entry from my dear cousin, Emily (she is actually my husband’s first cousin – his side of the family is the one with the  Type 1 Diabetes and Celiac Genes – in fact, our family is scientific proof of the link between the two since we have multiple members with both diagnosis’).  She has so kindly shared her story about her own path to diagnosis, from Type 1 Diabetes to her troubles with gluten, dairy, and soy.  It is a long story, but SO worth taking the time to read through.  She has struggled with so many different symptoms and complications that most would never attribute to gluten and other food sensitivities.  I am so proud of how diligent and dedicated she has been to restoring her health in as natural a way as possible.  Her story touches on weight issues, hormone problems, mood and energy levels, and  so much more – issues many of us are struggling with each and every day.  It is an inspiring tale in that her determination has resulted in such positive benefits to her health!

Emily’s Story: “As a 6 year old girl, you’re allowed to be small, but when you weigh 39 pounds, that might be cause for alarm. In fact, for me, that was a huge red flag to my mother. She took me into the Dr’s office because I had been going to the bathroom a LOT and had been asking for water constantly. She thought I had a bladder infection but when I stepped on the scale she knew something more was wrong. The doctors had me pee in a cup (not an easy feat for a tiny person on those industrial toilets, let me tell you) and they tested the amount of sugar in my urine. Turns out there was quite a bit of excess sugar and my pediatrician made the call of “Diabetes” with almost no other testing. He sent us straight to the hospital and I was diagnosed on November 11, 1995 with Type 1 diabetes. I stayed in the hospital on an insulin drip for a few days and my parents (and to my excitement my older brother) took turns staying the night on the pitiful cot in my room. About all I remember was eating a lot of green grapes,cottage cheese and jello; a nurse in training who couldn’t, for the life of her, hit the veins in my tiny little arms, thus resulting in a lot of needle sticks just to draw blood; and the Nintendo 64 movable entertainment system complete with Mario games and Banjo Kazooie. My parents came up with all sorts of things to try to cheer me up (look! a blown up glove looks like cow udders!) but ultimately I think they were trying to calm themselves down as much as me. My life changed drastically, but to be honest, now I don’t really remember life before diabetes so this lifestyle doesn’t really seem so cumbersome.

Sure I had my times of “I HATE DIABETES!!” and refusal to eat at specific times to counteract my insulin which was to start working at a designated time, but now I’m pretty well rooted in the fact that this disease is really a part of who I am. In fact, I think that a good portion of who I am and how I handle situations has been shaped by the fact that I can’t ignore this aspect of who I am and must therefore embrace it rather than try and forget it exists.

I went on an insulin pump in 6th grade and have developed my own routine of on and off pump therapy combined with the option of long-term insulin once a day with supplemental single injections of short insulin (there is a lot of graphs and schematics which could be inserted here to help explain the basics of different therapy options but a good overview can be seen here  http://www.uchsc.edu/misc/diabetes/books/firstbook/firstbook8.pdf ). My way of dealing with my diabetes was not what they teach at the centers but my doctors never really could scold me for it because it seemed to work for me. I forged my own path and surprised my parents, doctors and even myself when I came back from my first few months of college with the best A1c yet. (An A1c is like a 3 month average of all your blood sugars and is an important element in overall diabetes care. Good A1c’s are correlated with reduced risk of heart disease, cancers, blood pressure/cholesterol maintenance, etc). My diabetes also made me more aware of my body and how I was feeling than most of my friends and people my age. Being able to read your body’s signals to determine your blood sugar’s direction is very important to good care. I was conscious of my food choices already as a diabetic and as an athlete. And I also LOVED to bake and cook. My birthday gift of choice for friends was always a handmade cheesecake or other delicacy.

College was a place for me to continue growing, but unfortunately I was growing in more ways than one. I started gaining quite a bit of weight the second semester of my freshman year and was having a very hard time taking it off (even though the end of my freshman year was accompanied by hour long workouts 5-6 days a week and in the fall I had been quite svelte and slimmed down with less exercise). I would gain muscle and lose no fat! The day that I felt hopeless panic was when I tried to put on my largest pair of jeans and couldn’t even button them. I knew something had caused this. Sure I hadn’t been the skinniest person in high school but I was definitely not as hefty as I was then. The only thing that I could think to blame it on was that I had started on a birth control that fall. When I started to think about it… a lot of other things started about 2 months after that dreaded pill. I had started on the pill to make myself regular and to lighten up my periods a bit. I didn’t want to think/worry about when aunt flow would wonder into my life while I was in the middle of making new friends and starting new classes during that freshman year. I started getting cramps, I was crabbier before my periods, I got more acne, more bloating, more fatigue and I started getting constipated… a lot.  This all started about the end of December (I started the BC around October). Anybody that knows anything about why some people take BC knows that usually they take it to REDUCE the amount of all that fun stuff, but not me. So I went back to my school nurse, told her what was going on and she switched me to another birth control after taking a month off the other one. When I came home for the summer I saw my dr about the growing trouble of the constipation. He told me to “drink more water, eat more fiber and exercise more.” Okay, I thought, that’s easy. I ran more, drank large nalgenes and ate more whole wheat. Well, that didn’t work, and it didn’t work after all my other dr’s told me the same thing- doctor after doctor. “Water, exercise and fiber.” Eventually one Dr put me on a dose of miralax everyday (supposed to be a stool softener which is non-addictive).  The other BC made all that other stuff better for about a month and then it came back. This time I was on that type for about 3 months, then I went to my gyno. I told her I was frustrated about all the symptoms and weight gain. She said that it’s not PROVEN that weight gain was a symptom of BC and that she said that some women experience some constipation before their periods so it was probably normal. She put me on YAZ because it was supposed to have milder side effects.

Three months later, and I was still having all the problems as before.

The first month of my sophomore was heralded in at a hefty 155lbs (my heaviest yet) and I decided to join Weight Watchers. I might say that this is where things started turning around for me. I started losing weight and slimming down. I was down 20 lbs by January when I left for Semester at Sea. In October I was so fed up of having to deal with paying for BC which was making feel crappy and halting my weight loss that I just stopped taking it. November came, no period. December, no period. Hmmmm. This didn’t seem normal and I was about to embark on a 3 1/2 month journey around the world on Semester at Sea (my diabetes was doing great through all of this trouble so that was a relief, at least). I went to see my Gyno again and told her I hadn’t had a period in 3 months and was leaving the country in a week. She gave me a shot of progesterone and told me I would probably get it in about 2 weeks. Well, 2 weeks went by and no period. January, Febuary, March, April- all period-less. I didn’t get a period until the very beginning of May… after being Gluten free (or mostly GF) for about a month and a half.

Why eliminate gluten? Well my friends, I had been dealing with some other problems after life on the ship started. I kept complaining to my mother about this or that. She googled it and one of the top responses was Celiac’s disease. Type1 diabetes and Celiac disease are often connected, so it wasn’t a connection she wasn’t willing to look into. She told me about it, I wiki’ed it and all the other symptoms seemed to match up (at this point I had very dry skin especially on my hands [had all my life], hair loss, joint pain in my knee where I had never had problems before, constipation, missed periods, fatigue…) and there was another girl on the ship with Celiac’s who I had talked with about it. I took out bread, pasta, my morning all bran, tortillas, etc. I messed up and wasn’t completely GF because I didn’t know about oats and was using granola bars as snacks for Low blood sugar, I was eating corn flakes or rice crispies which have malt, and would sometimes eat broth from noodle soup, just not the noodles. I didn’t know better but I FELT better. I was exercising every day, eating well, losing weight and losing a lot of body fat, and was a happier person. My constipation was even alleviated a little bit and I wasn’t on Miralax except some bothersome days.

When I came back to the states I got a blood test done for Celiac’s. It came back negative (YES!! I CAN EAT PIZZA!) but I had been Gluten free, so I started eating gluten again and then a month later was  tested again. Negative again. Well awesome! Except not. My summer was plagued with terrible fatigue which would feel like my arms were filled with sand and my mood was often sour. My period never came back after May. I was trying to keep up my exercise regiment and was running at home but I slacked off more and more because I was so tired. My constipation worsened again too to the point where I got a colonoscopy to check for blockage or cancer. It came back negative which was exciting but frustrating. The gastrologist put me on Amitza, a pill to relieve constipation twice a day. I reacted terribly to it during the day with nausea and the spins/headaches so I would only take it at night right before bed. It did it’s job but I was worried about staying on it long term and it was expensive.

I went back to college early in the end of July to start work, and by August and the beginning of school I was having trouble concentrating, the fatigue was terrible and my weight (even with weight watchers) was creeping back on because I wasn’t exercising. My dad talked to a functional medicine nurse he had worked with and she suggested a test trough the EnteroLab. I decided to get the test for gluten and dairy sensitivities as well as the Celiac Gene, after trying to work out one day after eating pasta and about passing out at the gym. We decided to test dairy too because it had similar symptoms as gluten. My test came back as a bit of a blow.  I had come back with IgA responses to both Gluten and Dairy as well as testing positive for the Celiac gene (though it said I wasn’t testing positive for Celiac itself.) The fat score had come back that I didn’t have intestinal damage (aka no malabsorption), which was about the only positive thing I could see here.

Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Anti-gliadin IgA    88 Units   (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA    29 Units   (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score    Less than 300 Units   (Normal Range is less than 300 Units)

Fecal Anti-casein (cow’s milk) IgA    20 Units   (Normal Range is less than 10 Units)

HLA-DQB1 Molecular analysis, Allele 1    0302

HLA-DQB1 Molecular analysis, Allele 2    0301

Serologic equivalent: HLA-DQ   3,3  (Subtype 8,7)

So I took out Dairy (casein) and gluten (and this time I did it right, with the removal of all that extra stuff I didn’t do the first time.) I felt a lot better but was still having bad bouts of fatigue. I started noticing that it was often correlated with eating soy. So about a month after I took out Gluten and Dairy, I took out soy. About 2 weeks after that (as I was feeling better) I got another enterolab test for soy done. It came back with IgA responses to that too. So Soy was out too – including Soy Oil and Soy Lecithin.

Soy Sensitivity Stool Test

Fecal Anti-soy IgA    34 Units   (Normal Range is less than 10 Units)

I dropped 5 pounds without a problem (and actually eating more than I was before) and I felt more alive than ever. My hair stopped falling out, my hands weren’t as dry (I started using an almond/oatmeal soap bar rather than harsh Dial or other common hand soaps). I started exercising again and was able to maintain about 30 mins of cardio work, which seemed impossible before. I embraced the challenge of baking with gusto and enjoyed making healthy and gluten/dairy/soy free baked goods. I pulled my knowledge about how to accept my diabetes and thriving with it and applied it to my new diet. But I still hadn’t had another period so I went to a gyno out in CA who told me after some blood tests, that I had very low estrogen levels. No estrogen meant no lining which meant that no amount of progesterone would make a period happen. She wanted to put me back on BC to control it and I said NO. I didn’t want to go back to cramps, acne and terrible mood swings. I told her that I thought I would get it again soon cause I had gone off gluten and that seemed to help last time. I got some semblance of a period over Christmas (the 25th actually; thanks, Jesus) but still nothing like a normal period.

I saw an allergy doctor in December and was tested for allergies to apple, barley, corn, oats, rye, rice, wheat, soybean, casein, milk, green pepper, beans (lima, navy, string) and coffee. I mildly reacted to only apples, and not enough to keep me from eating about one a day! So in Jan I went to a functional medicine doctor with an MD degree. He was worried that I had a thyroid problem (something that I’d been tested numerous times for before and shown no sign of) or adrenal glad problem. He put me on various things including d-penitol and cytozme (to spur my ovaries and pituitary gland to start producing hormones again), sea salt, and B12 and P5P (b6) which he said all diabetic need. The only thing that seemed to work was the MSM for my knee (which was diagnosed as low cartilage), and even he was surprised when I came back home for Spring Break and had no period yet. He had me do an Organic Acids test. I came back with high levels of Glucarate (detox indicator), Benzoate, phenyfacetate, p-Hydroxybezoate (bacterias), Citrate and succinate (energy production), low sulfate and high D-arabinitol (yeast).

With this he put me on garlic pills to treat the yeast infection (I had had a skin yeast infection that past fall which my dermatologist gave me pills for and it went away, and I had BAD oral thrush which I didn’t know was oral thrush until I started reading about candida yeast infections.) And it worked, my oral thrush went away and I had even more energy. But I still had constipation and it still got worse before my period. So when I saw him over Spring Break I told him I was tired of paying for things that weren’t working and I wanted a blood test (insurance pays for that). I finished off my pills, waited a month and when I came home for this summer I took some tests. Those came showing that it looked like my estrogen and progesterone looked a little low but because I was lucky enough to go in on one of those rare days when I had spotting (period!?) that we had a reference point for what my levels should look like. We decided that I wait until I think I’m about a week outside my ovulation and then take more tests thinking that it is a problem with my progesterone (which spikes in your second half of a woman cycle, after ovulation). If the levels are low or high we’ll deal with them then.

On the other side of this problem – the food.  I went on an elimination/detox diet when I got home this summer. I took out a LOT of foods and slowly put them in. I designated weeks for soy testing (giving myself enough time to try some, wait three days and look for symptoms and then try it again), dairy testing and gluten testing. I felt AMAZING after my first week off refined sugars, caffeine and fake sugars (other than stevia) and have been reluctant to add them back in, I only recently decided to try diet coke (which was my drug of choice before) and found that I’m not so fond of it anymore. Soy was first of the big 3 to try and I have had no reactions, as far as I can tell, to it. I’m very excited to be able to eat many types of Chocolate again! Dairy I’m not so sure about. The first time I tried it I had a GF pizza and low fat mozzarella. That night and the whole next day I had bad bloating and painful stomach ache (gas?). I waited 3 days and tried to eat some greek yogurt. That day I had no stomach issues but I had a very off day. I was tired and very melancholy and had an on/off headache. I talked with my functional dr and he said that it could have been a reaction to the yogurt or my body trying to have a period. I decided to wait on the milk thing and try it later. The most exciting thing for me was the day I was to try gluten. I had a piece of gf toast. And it was marvelous, but I felt spacey, brain foggy and almost drunk for the rest of the night. My symptoms luckily have not lasted longer than a day or a day and a half.  I had also accidentally glutened myself a few days before this by eating a marinaded chicken with soy sauce (forgetting that soy had wheat) and I had similar brain fog for a couple hours after I ate it. So that seems to be my problem with Gluten. I’m going to try dairy here soon again to see if I react the same way. I have to think positively because I think I’m very subject to mentally giving myself symptoms. I don’t think that I’ll ever eat gluten full time again because when I tried that everything got worse, but its good to know that I can have it sparingly and if I eat crumbs in the peanut butter I won’t die.

As of right now, Im just starting to put some caffeine back into my diet and I’m watching my sugar intake. I’m managing my diabetes, starting back on WW because my weight is creeping back up.  I am also slowly testing dairy and soy again. Gluten is out but I think that I’ll be able to have a slice of cake or a sip of beer every once in a while. I’m in no way going to eat it every day.”

Thank you so much for taking time to read this story.  If it resonated with you in any way, or if you have a story to share of your own, please leave a comment here.  I would love to hear from you!

21 Comments
  1. On July 8, 2010 Katie said

    I just found out I’m allergic to a lot of foods (dairy, rice, oats, barley, oranges, tomatoes, all nuts, raw veggies, and corn) and know your pain of trying to cut things out but not knowing what is included in what. I would love any recipe suggestions you may have or any resources that you rely on for knowledge. Thank you for sharing your story!

    -Katie

    • On July 8, 2010 Kim said

      Hi Katie,
      What a challenge you face with your allergies! This blog is dedicated to helping people with all kinds of food allergies. Every recipe I post will give an option for substitutions to the different main allergens (and every recipe is always written to be gluten free). I am building my recipe database on the blog all of the time. If you have an iPhone, iPod Touch, or iPad, you can get my Cook It Allergy Free App that has over 200 recipes in it already and growing on a regular basis!
      I am always here to answer ANY questions you might have as well!!!
      Kim

  2. On July 9, 2010 Katie said

    Kim, Thanks for the blog and recipes!

  3. On July 10, 2010 Lexie said

    Emily … Thank you for your story! The more stories we can publish and get out there the better we all will be at piecing together and solving some of these great medical mysteries! You’ve been down a long road but it has not been for nought! Your experience and story can help so many. In our family it’s my 2 year old who we keep strict GF, but to support him I went off of it, too. Funny thing is that my experience with gluten is JUST like you said: “I had a piece of gf toast. And it was marvelous, but I felt spacey, brain foggy and almost drunk for the rest of the night. My symptoms luckily have not lasted longer than a day or a day and a half. ” I used to LOVE “good bread” but now when I have it I get soooo sleeeepy and foggy. I think people suffering from depression and the blues should try eliminating gluten for a month and see how they feel (my opinion only). The “opiate” affect gluten and casein can have on the brain is real. I like how you described it as feeling drunk. For the last two years (up until we did the anti-candida cleanse and went off gluten) I felt like I was walking around in this world under the influence of a glass of wine. Nothing was “clear”, just a spacey fuzzy feeling. I may be gluten sensitive, who knows. I just feel better without it. So again, thanks Emily (and Kim) for this post.

    • On July 13, 2010 Kim @ Cook IT Allergy Free said

      Hey Lexie,
      Thanks so much for commenting on Emily’s story. I am so honored that she took the time to share it with us. Our family is really a great example of the link between Celiac Disease and Type 1 Diabetes.
      And, I, too always feel a little punch drunk after eating gluten. Plus, my stomach feels really gross and bloated for a day or two afterwards. Crazy what it will do to you!

  4. On July 17, 2010 Emily said

    Hey Lexie,
    Thanks for reading the whole thing, it was a doosy to write and I’m glad that I’m reaching out and connecting with people as I once did when i first went off gluten and needed a support system! I’m glad that you supported your child and went off gluten as well, eating GF in a gluten-filled home is difficult (I’m currently in dorm situations) and its hard to avoid the cross contamination (I admit, I’m not as strict as I should be and I’m pretty sure that I’m noticing the repercussions of it-oops)! But thanks again for reading and commenting.

    Emily

  5. On August 1, 2010 VEGirl said

    Wonderful story– so glad you’re finding answers!
    VEGirl

  6. On August 3, 2010 Heidi said

    Emily,

    Bless your sweet heart, I just want to hug you! Thank you for sharing your story, you never know who you might help!

    It was very interesting to me your mention about the skin yeast infection. It was mine that set me on the path to discovering all my hidden health issues. I had developed a red, inflamed sore on my leg during my last trimester of pregnancy with my first son. My Dr. said it was because of the added pregnancy weight and the hot summer weather, but that it should clear up after I gave birth. Many months later, I was still dealing with it. My Dr. would prescribe topical medication, it would go away, only to return shortly thereafter. My Dr. then suspected Diabetes (sore that wouldn’t heal) and ran some blood tests. While I didn’t have diabetes, I had an off-the-chart high thyroid (Graves’ Disease). It was after my thyroid was ablated and I couldn’t absorb my thyroid replacement hormone for the next 10 months that my endocrinologist screened me for celiac disease and there it was.

    Wish I could say that was that and I have been happy and healthy ever since, but unfortunately, that was not the case. I would cheat off and on for the following 3 years, until I had a “Come to Jesus” meeting with a hideous outbreak of dermatitis herpetiformis.

    Funny thing, I had had DH since I was at least 15, but it was NOTHING like that final rash. I maybe had two blisters on my knees at any given time (and usually only during the summer months when I had to mow my parents lawn), my allergist and dermatologist chalked it up to my grass allergy and told me to quit mowing the lawn (which is interesting and ironic because wheat is in the grass family). Several years later when I lived on my own, I mowed my grass shortly before going in for my weekly allergy shot. Within minutes I began coughing and scratching my throat which caught the nurse’s attention and she took me back for a shot of adrenaline! My body had already been in histamine overload from mowing the grass, then they injected even more into me. I have always been interested in the grass allergy/gluten sensitivity connection.

    After the final DH outbreak I have been strictly GF (outside of unintentional glutenenings) for 2 years, but my health problems continue. Right now I am battling iron overload and potential hereditary hemochromotosis (will find out after I see a specialist next month).

    I am 36 with 3 autoimmune diseases and possibly a 4th disease that is potentially life threatening. And ya know what? I never had chronic GI issues, which is what many doctors look for before even thinking to screen for CD.

    When my then, just turned 5 year old tested positive for CD on a blood test, but his biopsy came back “clean,” the doctor initially told me to let him resume eating gluten and we would re-scope him the following year.

    The thing is, there are many flaws with the intestinal biopsy, and even the blood tests aren’t perfect. My biggest fear for my son was actually developing Type 1 Diabetes. Celiac Disease can be controlled by diet, Type 1 (as you well know), is much more invasive, and it is permanent. Once a person has one autoimmune disease, the risk of developing more increases (like with me). So, I put my Son of a GF diet immediately (after his pediatric GI “off the record” told me that is what he would do if Sam were his son).

    I think celiac disease the only disease that doctors actually recommend to keep consuming the offending food until it is too late. Do they tell people with high cholesterol to keep eating a high fat diet until they have a heart attack? Do they tell people with high blood glucose levels to keep eating sugar and gaining wait until they have Type-2 diabetes? A high salt diet for people with elevated blood pressure until they have a stroke?

    Sorry for that little rant, LOL! ;-)

    I know it can be hard, and I can only imagine the difficulty in college. Just be careful my dear, and take good care of you, we only have one body. ;-)

    ((Hugs)),
    Heidi

  7. On August 4, 2010 EMily said

    Heidi,

    Thanks for sharing your story as well! I really appreciate all the feedback. I’m sorry to hear about all the stuff you’re going through-I really hope that you get to the bottom of your issues soon. (I have a friend battling Chron’s disease right now who started to become immune to her medication, soon after she switched she developed a continuous fever–I think almost 2 months now– and cough. She still doesn’t know how to combat it or why its happening. She was also diagnosed with “Interstitial Cystitis. Chronic inflammation of the bladder that i will have for the rest of forever. Like Crohn’s but in the bladder.(according to her)” I’m hoping they figure it out for her sake soon!)
    Its stories like this that make me really sad. None of our doctors can figure this stuff out and it gets so frustrating when 3 doctors tell you the same thing. ITS NOT WORKING. haha

    Maybe soon there will be a breakthrough and many people’s problems can be relieved. Until that point I’m gonna keep talking, keep researching, keep reading, keep COOKING, and keep Livin’!

    Emily

  8. On September 18, 2010 Jennifer C. said

    Thanks for sharing! How did you find your functional medicine doctor? Do all allergists do food allergy testing? What kind of a test are you taking to find out that you are allergic/sensitive to things like fruits/vege’s, etc.??

  9. On November 16, 2010 Wayne said

    I feel that anyone and everyone should try a gluten free diet. I had always heard only adults with celiac, like aunts and uncles. But wow have we found out how children from such a young age can have celiac disease too but many times you think its ADHD, ADD, etc. With our son, he went from an extremely calm easy-going child to something very aggressive and angry. Due to my wife’s education, we tried a kinesiologist and pinpointed he had celiac. Since then we have changed his diet and the calm child is back! You can read a could of my posts about our ordeal on our website/blog ( http://www.caringformyhealth.com ).
    Oh yes, being the whole family has been on a gluten free diet to help our son, I have definitely within 2 months lost 10 pounds just from the changed diet. Hey, it doesn’t hurt!

  10. On December 18, 2010 Patti said

    I have been a type 1 diabetic for 20 years (having been diagnosed at age 40.
    Just in the last year I have go gluten free, since my Mom has suffered with the skin rash symptom of gluten sensitivity. Had heard rumors that it could cause type 1 diabetes, so I thought I would give it a shot. After being gluten-free for almost a year, I have reduced my need for insulin dramatically and have lowered my a1c as well.
    Wishing they would do more research on the connection so that more people could be helped.
    Thank you for your story, Emily!
    :) Patti

  11. On December 20, 2010 Marcy said

    Emily – thanks for your story. I honestly got choked up before I finished the first paragraph. My son was diagnosed with celiac when he was 6 (nearly 3 years ago – he spent the first 6 years of his life struggling with his health) and our family has been gluten free since then. Especially this time of the year, I can get a little “woe is me” over all the food focused celebrations and complexities the disease presents for him socially (sleepovers, parties, etc.) When I read your line it’s just the way you’ve always known life – it still chokes me up. He just rolls with it and inspires me to no end.

    I can relate with so much of your story. Thanks for sharing.

    Kim – thanks for your blog. I’m so glad I ran across it this weekend. I look forward to reading through the archives and following future posts!

  12. On February 3, 2011 Nikki said

    Wow! What a story! My 8 yr. old son has just been diagnosed with type 1 in Nov. 2010 and celiac disease in Dec. 2010. I actually need to get him tested for milk allergies as well. I have hashimoto’s thyroid disease. I think the one thing that I’ve learned over the years is that you know your body best and you have to research, research, research until you can finally get a diagnosis.

  13. On May 13, 2012 Arien said

    Hey, thank you for sharing, it’s really an interesting topic, since most doctors keep thinking that a Diabetes type 1 is just something that happens. Ah, how I love scientist talking about bad karma…..

    anyway, your post reminded me of an article I stumbled upon some time ago. An article, too long to keep my attention, then I thought. Today, I read it till the end and it’s funny how at some point the autor offers a very good explanation at why diabetes type 1 and gluten- intolerance can be connected, even if the blood tests say differently.

    If you have the time- it’s worth the read.

    http://www.fourhourworkweek.com/blog/2010/09/19/paleo-diet-solution/

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